Manuals, project support, documentation, multimedia files

This page offers links to a number of files which may not be viewable with your browser alone, but may require additional programs instead. Try to view the files by clicking on the links first. If this should not work, please consult this help-page.

Please note that some of the files listed here may be too big to transfer them via Internet (especially the videos). They can be viewed conveniently from the CD-ROM-version of this site.

If you would like to use the source files of the documents which are supplied in the Portable Document Format for your own projects involving the QL-Recorder, you may receive them from me based upon an individual agreement.

Summarizing information:

• The Quality-of-Life-Recorder: a quick overview (ancient) (pdf-file)

• The GraTaSim Quality-of-Life Recorder: one-sheet-summary (ancient) (pdf-file)
• SC-JMS GraTaSim Quality-of-Life-Recorder: short description (ancient) (pdf-file)

Instructions, tutorials, examples:

The QL-Recorder using AnyQuest for Windows

• Quick Guide: How to install and use the Quality-of-Life-Recorder (pdf-file)
• Quick Guide: How to make your questionnaire go electronic (pdf-file)
• Quick Guide: How to save time using Jörg's Magic Questionnaire-o-matic (pdf-file)

• Installation guide
  from the eSIRO project (very comprehensive, very detailed, with recommended Windows XP Tablet PC edition configuration, German only but with screenshots) (pdf-file, 2.9 MB)
• Questionnaire administration guide
  from the eSIRO project (very comprehensive, very detailed, German only but with screenshots) (pdf-file, 1.5 MB)
• Printout interpretation, data analysis and data export guide
  from the eSIRO project (very comprehensive, very detailed, German only but with screenshots) (pdf-file, 2.2 MB)

• Handling of the Quality-of-Life-Recorder: Step-by-step guide
  from a project in the pediatric clinic of the University of Ulm (Only first part in English, but with images) (pdf-file)
• How to use the QL-Recorder and documentation of the local installation.
  In this setup, the QL-Recorder delivers data to the tumor documentation system TREG via a hospital network (German only) (pdf-file)

• AnyQuest for Windows - Technical introduction for advanced users (German only) (pdf-file)

• How to transfer data from AnyQuest to SAS Statistical Analysis Software (or to SPSS) and how to perform simple data analysis using SAS

The original QL-Recorder using GraTaSim and AnyQuest for MS-DOS

• SC-JMS GraTaGen: Dokumentation und Lizenzvertrag (German only) (pdf-file)
• SC-JMS GraTaSim: Dokumentation und Lizenzvertrag (German only) (pdf-file)
• SC-JMS GraTaSim Demonstration: Dokumentation und Lizenzvertrag (German only) (pdf-file)
• SC-JMS GraTaSim Lebensqualität-Recorder: Dokumentation und Lizenzvertrag (German only) (pdf-file)

Outcome measurement in general and project design

• Electronically assisted Outcome Measurement - short version (pdf-file)
• Electronically assisted Outcome Measurement (German only) (pdf-file)
• Electronically assisted Outcome Measurement (German only) (presentation slides)
• Using the QL-Recorder to measure Quality-of-Life (pdf-file)
• Example of a project-draft: QL-measurement as part of a phase-I-study (German only) (pdf-file)
• Example of a project-draft: Introduction of outcome measurement, information technology and EBM into clinical settings (German only) (pdf-file)
• Example of a project-draft: Linking the QL-Recorders to a university hospital-information-system (HIS) (pdf-file)

Videos:

• Seamless integration of the Quality-of-Life-Recorder with the Quincy PCnet electronic medical record through the GDT interface (preliminary version, mpg-file) plus separate script (pdf-file)
• Handling of the Quality-of-Life-Recorder with a printer with an infrared light connection (German audio track, only) (mpg-file)
• Handling of the Quality-of-Life-Recorder during a complete QLQ-C30 interview (German audio track, only) (mpg-file)
• Demonstration of the Quality-of-Life-Recorder with the GCSS-questionnaire with discrete answer-fields and visual-analog-scale (German audio track, only) (mpg-file)

Scientific publications on the topic:

• My thesis about the developement of the QL-Recorder and its routine use in a university out-patient clinic (German only) (pdf-file, 7085 KB)
• Publication in Cancer Treatment Reviews (text only) (copy, pdf-file, 3750 KB)
• Sibylle Holch's thesis about the routine use of the QL-Recorder in in-patients (pdf-Datei, 1090 KB)
• Dirk Höhmann's thesis about the clinical significance of EORTC QLQ-C30 data for the prognosis of patients with Breast, Pancreatic, Ovarian and Colorectal Cancer (German only) (pdf-file, 3840 KB)
• When will we have electronic patient files? ESPO Newsletter (text only, pdf-file, 817 KB)
• Quality of Life - Why you should quantify the well-being of your patients. Reprint from "Der Allgemeinarzt" (German only) (pdf-file, 2042 KB)
• "Metastasen bei unbekanntem Primärtumor" - Reprint from "Münchener Medizinische Wochenschrift" (German only) (copy, pdf-file, 2675 KB) (text only, pdf-file, 75 KB)
• "Was bringt die Behandlung?" - Reprint from "Münchener Medizinische Wochenschrift" (German only) (copy, pdf-file 1931 KB) (text only, pdf-file, 75 KB)
• Chen T, Li L, Sigle J, Du Y, Wang H, Lei J: Crossover randomized controlled trial of the electronic version of the Chinese SF-36. (Feasibility, acceptance, and cross-validation of paper based SF-36 and QL-Recorder based eSF-36)
  J Zhejiang Univ Sci B 2007 8(8):604-608. ISSN 1673-1581 (Print), ISSN 1862-783 (Online). PMID: 17657865 (Publication available online, free full-text in PubMedCentral)
• Rogausch A, Sigle J, Thüring S, Kochen M, Himmel W: Patientenbefragung per Tablet-PC.
  Dtsch Arztebl 2007; 104(42): A 2857-60. (Publication available online, full-text freely accessible)
• Herschbach, Berg, Pirker, Henrich, Emrich, Sehlen, Dühmke, Geinitz, Molls: Computer based evaluation of a screening procedure for psycho-oncological treatment during radiotherapy. (Feasibility, acceptance, costs, and cross-validation of paper SIRO and QL-Recorder based eSIRO)
  In: Abstracts of the 8th World Congress of Psycho-Oncology, 16 th-21 st October 2006, Ferrara-Venice, Italy. Psycho-oncology 2006; 15(iss 2 Suppl): S1-462; PMID: 17338072 (Overall)
• Strong V, Waters R, Hibberd C, Rush R, et al.: Emotional distress in cancer patients: the Edinburgh Cancer Centre symptom study. (Routine use of 5 QL-Recorders for outpatient screening with QLQ-C30, HADS and other questionnaires)
  Br J Cancer. 2007 Mar 26;96(6):868-74. Epub 2007 Feb 20. PMID: 17311020
• Storey DJ, Waters RA, Hibberd CJ, Rush RW et al.: Clinically relevant fatigue in cancer outpatients: the Edinburgh Cancer Centre symptom study. (Routine use of 5 QL-Recorders for outpatient screening with QLQ-C30, HADS and other questionnaires).
  Ann Oncol. 2007 Nov;18(11):1861-9. Epub 2007 Sep 5. PMID: 17804467

Book contributions:

To comply with the publishers preferences, I provide only titles of books and links to the publishers' respective on-line ressources. Carl Hanser Verlag provide my diagram "Informationsspeicher und Informationsfluß in einem Rehaklinikum zur Berücksichtigung bei Planung und Implementation eines EDV-Systems" which has been published in their Handbuch Medizinische Informatik on their WWW pages as downloadable PDF-file.

• Porzsolt F, Greimel E, Sigle J, Eisemann M: Lebensqualität. In: Höffken, K, Kolb G, Wedding U (Ed.): Geriatrische Onkologie. Springer Verlag, ISBN 3-540-67411-X, 141-151 (2001)
• Sigle J: Lebensqualitäts-Recorder. In: Wilhelm HJ (Ed.): Direkt übernehmbare Vorlagen zum Qualitätsmanagement im Gesundheits- und Sozialwesen. Forum Verlag (2001)
  also in:
  Viethen JG (Hrsg.): QM-Checklisten für das Gesundheitswesen. Forum Verlag (2002)
• Sigle J, Wilhelm HJ: Medizinisches Qualitätsmanagement. In: Lehman T, Meyer zu Bexten E (Ed.): Handbuch der medizinischen Informatik. Carl Hanser Verlag, ISBN 3-446-21589-1 (2002)
• Sigle J: Elektronisch unterstütztes Outcome Measurement. In: Beuth J (Ed.): Grundlagen der Komplementäronkologie. Hippokrates Verlag/Thieme Verlagsgruppe, ISBN 3-8304-5261-6 (2002)
• Sigle J: Electronically Supported Outcome Measurement. In: Beuth J, Moss RW (Ed.): Complementary Oncology. Thieme Stuttgart, New York, ISBN 3-13-137451-9 (GTV) ISBN 1-58890-323-0 (TNY) (2006)

Additional literature is listed in the respective section of my CV.

The Lilly Quality of Life Award 2002 - a QL-Recorder user's experience!

• Lutz Goldbeck, Tim Schmitz: Lebensqualität von Jugendlichen und Erwachsenen mit Mukoviszidose (German only) (pdf-file)
• A brief visit to Lilly tells you more about the award, but only after you have returned, can you learn more about the tool!

Presentation of the QL-Recorder at the MEDICA, Düsseldorf, by the Fraunhofer Gesellschaft IAO

Based upon their own positive experience, the Institut Arbeitswirtschaft und Organisation of the renowned Fraunhofer Gesellschaft chose the QL-Recorder as an example of innovative technology useful to face the the challenges emerging from contemporary changes in the field of medicine.

• The exhibition leaflet of the FHG IAO (German only) (pdf-file).